PR: Rare Disease Communications Strategy


Spotlight on Rett Syndrome Burden of Disease

  • Illuminate breathing difficulties as a critical element of Rett syndrome within the scope of Newron’s mission
  • Drive focused messaging across stakeholders to communicate the severity of Rett syndrome symptoms
  • Multi-media approach to communicate impacts of breathing difficulties
  • Increase investor awareness on the impact of this fundamental re-understanding
  • Build international visibility for Newron’s Rett Burden of Disease Study
  • Developed a video series on the burden of disease employing personal stories from patients and families
  • Planned and executed a successful investor event with high in-person and webinar attendance
    • On target messaging from leading experts in the field
  • Developed and shared original content on social channels during Rett Awareness Month, with a focus on burden of disease